Kids & Family

Educating, Supporting and Empowering the Autism Community.

Episodes

EPISODE 49: THE AUTISM CAFÉ – A PLACE OF LOVE AND SELF-DISCOVERY

With Eileen Lamb

 

INTRO:

Hey, guys! Welcome to the My Autism Tribe podcast! If this is your first time, I’m glad you found us, and if you’ve been listening – welcome back! Today I’m speaking with Eileen Lamb. She’s the founder of blog The Autism Cafe, and she is also a writer and photographer. Born in France, she now lives in Austin, Texas with her husband and two sons, Charlie (6) and Jude (3). On her blog, she shares the ups and downs of raising a severely autistic child while being on the autism spectrum herself. You’re not gonna want to miss this one. I’m really excited to have her on the show today.

Also, don’t forget to check us out on social media. That’s Facebook, Instagram, Twitter and YouTube. It’s My Autism Tribe across the board, so find us, follow us, join our tribe. We’d love to have you!

 

SEGMENT:

Before we start our interview, I’d like to share with you a quote from our guest today. You can find this on her blog The Autism Café: “Dear Strong Woman: You don’t show your pain because you heard that to be vulnerable is to be weak, that crying is a flaw, and that you need to get back up as soon as you fall. Yet you don’t.  I’m here to tell you that it’s okay if you can’t. Strength is finding the courage to speak up in a world that has been cruel to you. Strength is letting people in, no matter how many times you’ve been hurt before. Strength is being able to say, “I’m not okay right now. I need you.” Those are such powerful words, right? I’m so happy to welcome Eileen to our show.

 

CONCLUSION:

Eileen’s unique story, coupled with her absolutely stunning photography, is an inspiration and tribute to all who overcome the impossible and persevere for those they love. There are so many people out there that are, for whatever reason, traveling on this journey alone…but it doesn’t have to be that way. I hope you, and others, find relief in knowing that there are a lot of us traveling the same road and you don’t have to travel alone. As Eileen points out, road trips can be fun – why not join others. We are not alone. Thanks for being a part of My Autism Tribe and I’ll see ya next week!

 

ADDITIONAL INFORMATION:

https://theautismcafe.com/

Facebook: https://www.facebook.com/theautismcafe/

Instagram: https://www.instagram.com/theautismcafe/

Twitter: https://twitter.com/theautismcafe

 

Get a hardback copy here: All Across The Spectum

Get the Kindle version here:  AATS on Amazon

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EPISODE 48: AUTISM ADVENTURES (WITH BIG E)

With Jacqui Folks

 

INTRO:

Hi there! Thanks for joining me today. I’m speaking with a busy mother of three young men, Jacqui Folks. Her middle son, Ethan, has autism, and she’s going to share her family’s story, along with some resources that she has been working on for the autism community.

I also want to let you know that this week will mark the one-year anniversary for the My Autism Tribe podcast. It seems like yesterday that I started it, but it’s been a whirlwind and here I am one year later…still breathing…high five!

If you haven’t had a chance to rate or review the My Autism Tribe podcast, it would absolutely be cool if you did. It helps people find our podcast – especially on Apple Podcasts. Thanks for listening, as always, and for going on this crazy journey with me. You’re the best!

 

SEGMENT:

Jacqui Folks son was diagnosed in 2003, a time when there were little resources out there for parents. Think about all the resources that we have now, including podcasts! She learned almost everything from books, but there was also something that she felt that was missing. I’m excited for her to share what that was. Please welcome Jacqui Folks.

 

CONCLUSION:

I love hearing inspirational stories from those in the autism community. We are a group of fighters ya know, and I mean that in a good way. A bunch of mama and papa bears, and fearless advocates, both on and off the spectrum that are clawing our way for better awareness and inclusion in our communities. It’s so awesome. Thanks for being a part of My Autism Tribe, and I’ll see ya next week!

 

JACQUI’S BIO:

When my son was diagnosed in 2003 there were little to no resources out there for parents. I learned almost everything I know from books. However, there were no children’s books I could share with him for his learning experience. It was always suggested to me to write social stories, and I did, but nothing is more catching than a good children’s book.  

Over the years I have kept them and my dream was to have a series of Autism friendly books, with a main character who has Autism, for spectrum kids to listen and learn from. Well, my dream is coming true. Book one in our series is here!! These stories are something I longed for as I was raising my son. They would have been so helpful to just pick up and read before each life event. I would have used them daily at home, in the community and in the classroom. I feel confident that they can help others in the future.

Here are a few reasons why:

-Simple, short, direct and honest text that is actually used in the home.
-Reference to visuals, picture boards
-The same returning character with a simple and fun name.
-The same start and end to each book, no matter how different the story or message is. Repetition is key!
-There are several stories about Autism but very few series. In my research I only found two and they were short series not based on daily life skills.
-My series does help with daily life skills but with fun illustrations and a relatable, adorable, supportive main character.

-A lot of parents and educators do not know how to access or write social stories. Why not provide them for these families and educators?

 

Awarded a top book of 2019 by Autism Live and featured in their 2019 Holiday Toy & Gift Guide:

https://www.facebook.com/adventureswithBigE/

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January 13, 2020

FUBAR: Autism Parenting

EPISODE 47: FUBAR: Autism Parenting

With Jessica Temple

 

INTRO: 

If you spend just one minute on Google searching for parenting memes, you’ll be inundated with hilarious quotes and pictures on how to survive parenthood. It’s something that us parents get a few good laughs from, while we’re silently screaming inside. How many times have we questioned ourselves, “Will I get through this?”.

My guest today, Jessica Temple, is the creator of a podcast called FUBAR: Surviving Parenthood with Special Needs Kids, and is also a board-certified clinical neuropsychologist. Her podcast is all about creating a non-judgmental space to realize that we all actually WILL live through this, and offer tips on making the survival of parenthood an actual possibility. It’s hilarious. Jessica and her husband have two children with special needs. Their oldest has autism, ADHD, sensory processing disorder, and developmental delays, and their youngest child had a perinatal stroke and has developmental delays. It’s a complete joy to welcome Jessica to our show today.

 

CONCLUSION:

There’s no perfect way of parenting, and as Jessica points out, there are always “fails”, “nails”, and “comical tales” along our journeys. Learn to embrace them, and know you are not alone. We’re all in it together. Thanks for joining me on my journey, and thanks for being a part of My Autism Tribe. See ya next week!

 

Additional information: 

Website: www.fubarpod.com

Twitter: https://twitter.com/fubarpod

Facebook: https://www.facebook.com/groups/fubarpod 

 

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EPISODE 46: A Confession to My Autism Tribe

with Susan Scott

 

INTRO:

Hi, everyone, Happy New Year! I hope you had an amazing send off to 2019.

I announced last November that I was taking a podcast break, so I thought it would be fitting to have the first podcast of 2020 be a confession to you on why this happened. It’s a bit uncomfortable to share, but you deserve to know so stay tuned.

Also, a reminder, if you’re enjoying this podcast, please rate and review us wherever you listen to podcasts, and share with a friend. That’s how we make our voice stronger. Thanks so much for listening!

 

SEGMENT:

  • I haven’t always been completely honest with myself and others. When people have asked me if I was ok, I would say, “I’m great!” because let’s face it, do people really want to know what kind of crappy day that you’re having when they ask you that question? I’ve even looked in the mirror and told myself that things were moving along quite smoothly, and things were looking up…when in fact, I felt like I was drowning. Perhaps a part of me was trying to “fake it ‘til I made it”.
  • In November of last year (2019), when I announced that I was taking a break in December, it was from complete and utter burnout. The kind of physical, mental and emotional burnout that left me feeling scatterbrained (beyond normal), dazed, not willing to make an effort of everyday duties like laundry, etc. But even worse than that, I felt myself disconnecting from my son. I was in my own world. That’s when I realized that taking a break was absolutely, without a doubt, imperative.
  • My Autism Tribe was formed initially as a standalone podcast, but then added a nonprofit component. This has proven to be one of the hardest challenges in my life. In 2019, I very literally poured every ounce of energy that I had (after caring and loving on my son) into this organization and podcast. I’ve had some event successes, and other events that have fallen flat on their faces. I don’t have an administration team helping me every day. It’s 99.9% me. I don’t have a significant other that can offer encouragement when I’ve had a bad day, and I know that many of you are in the same situation. It’s tough to keep all the plates spinning and still feel sane, am I right? But I’m not sharing this stuff with you for sympathy. I’m sharing because I want you to know about how some of my viewpoints have changed.
  • In the month of December, I did a lot of thinking, a lot of reflecting, a lot of praying, and I’ve decided that I’m going to change things up a bit. Let me explain.
  • Up until now, I’ve intentionally kept the My Autism Tribe social platforms very “branded”, if you will. I felt like this was a direction that I needed to originally go to establish the My Autism Tribe name, but upon reflection, it completely defeats the purpose of why I started My Autism Tribe to begin with. I wanted to reach people on a very human level, and I’ve done that to some extent through the podcast, but my promise to you is that I start letting you in to my personal life more. I’m always asking guests and followers to share their stories, but what about mine? At first, I thought, “Why in the world would anyone want to see my everyday life”, but then I realized that this is the very thing that I gravitate towards when I’m searching for connection with others. I can’t promise that you still won’t see branded content, because I still very much believe it’s important as a nonprofit, but I can promise you that I will be sharing more of my family. It’s going to feel weird initially, because I’ve never been one to share details of my life with just anyone, and there are some details that I will still hold close to my chest that are just too personal to share and may involve others, but well, welcome to my family’s life. I apologize in advance (laugh).
  • The same goes for the podcast. It is still my mission, and always will be, to have guests that are all uniquely tied to the autism community. Parents, siblings, relatives, providers, and most importantly self-advocates. That won’t change. I will, however, be doing some smaller “snapshot” episodes now and again that will have the theme “Just Ask”. These episodes will feature talking points or questions that have come from people like yourself, in the autism community, followers, etc. This is another way that I feel like I can not only connect each of you through this platform, but also connect on a deeper, more personal level. So, be looking for some of these prompts on the social platforms.
  • I’ll also be trying to do more videos, both personally and professionally, meaning that some will look like complete poo. The other videos will probably look a bit more polished, and those will more than likely be branded to some extent for the nonprofit’s use and distribution.
  • They always say that the best way to grow is the learn from your mistakes, failures, detours, and 2019 has had them. BUT, it was the first year, and I believe there were a lot of successes as well. I’ve met so many absolutely, incredible, inspirational, beautiful people this year, and I know that this year (2020) will be filled with the same. Constantly evolving, forever growing, and learning.
  • I’m SUPER excited to announce some BIGGER things that are in the works for 2020.
    • #1 – I’ve been writing a children’s book series this last year, and they will be (fingers crossed) pushing into illustration within the next month or so. These books will be for children both on and off the spectrum, providing a window and a mirror to autism. A mirror for children that are on the spectrum – allowing them to see the beauty of their differences, and a window for children that are not on the spectrum – allowing them to look into the world of someone that IS on the spectrum. These books began by me writing a story for my son to explain that his differences weren’t bad but beautiful, during a time that I felt like he was beginning to become more aware that he had differences. Each book will contain consistent and fun characters that children are able to closely relate to.
    • #2 – I’ve been working closely with a group of real estate developers and another organization to push for the development of an autism residential community where I live. This community will provide residential options and programs for those on the spectrum. We are nowhere close to breaking ground, but I wanted to share this with you, because it’s something that I’m very proud of, and excited about for our community. I’ll continue to update you as I have more details.
  • All in all, I want to thank each of you for listening to the My Autism Tribe podcast, and being patient with me as I continue to navigate this crazy journey both professionally and personally. It’s something that I’m so passionate about, and I want to continue to educate, encourage and inspire others…just as so many people have done that for me.
  • Here’s looking to a bright 2020, with a vision of hope for our ourselves and our loved ones. I love each and every one of you. Thank you for being a part of My Autism Tribe.
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